Further Information :
Resources on sex and sexuality for Health and Social Care Professionals
Table of contents
GENERAL INFORMATION
Organisations
Books
Journals
Papers
Booklets
Websites
Resources for families and professionals
Films
Helplines
Services and Self-Help Groups
Policies
SPECIALIST LITERATURE FOR VARIOUS PROFESSIONS
Medicine
Nursing
Social Work
Occupational Therapy
Sex Therapy
PAs and Care Work
Physiotherapy
Sex and Relationships Education (SRE)
SPECIALIST ORGANISATIONS AND LITERATURE ON VARIOUS SUBJECTS
Abortion
Adolescents
Anal Sex
Arthritis
Asperger’s Syndrome
Autism
Autonomic Dysreflexia
Back Pain
Birth Control
Blindness — see Visual Impairment
Brain Injury
Breathlessness
Brittle Bones (Osteogenesis Imperfecta)
Cancer
Cardio-Vascular Problems
Cerebral Palsy
Continence and Incontinence
Cystic Fibrosis
Dating
Deaf-Blind
Deafness — see Hearing Impairment
Dying
Erections
Heart Attack
https://www.acls.net/2015/04/01/is-there-sex-after-a-heart-attack-is-it-possible-is-it-safe/index.html.
Hate Crime
Hearing Impairment
Hip Replacement
Hysterectomy
Learning Dificulties
Lesbian, Gay, Bisexual, Trans and Intersex (LGBTI)
Loneliness and Social Isolation
Masturbation
Medications that interfere with sexual function and pleasure
Mental Health
Menopause
Motor Neurone Disease
MS
Muscular Dystrophy
Older People
Pain During Intercourse
Peyrones Disease
Phimosis
Psoriasis
Prostatitis
Rehabilitation
Safer Sex
Semen Allergies
Sex Toys
Sexual Abuse
Sexual Advocacy
Sexual Diversity
Sexual Services for Disabled People
Short Life Expectancy
Speech Impairment
Spina Bifida
Spinal Injury (see also Autonomic Dysreflexia)
Stammer
Stroke
Under-age Genital Cutting
Visual Impairment
War-injured Military
GENERAL INFORMATION
Organisations
Brook Advisory Centres provide sex and disability training and supports young people under 25 www.brook.org.uk
College of Sexual and Relationship Therapy provides information and lists sex therapists around the country
020 8543 2707
info@cosrt.org.uk
www.cosrt.org.uk
Counselling Directory to find psychotherapists and counsellors
www.counselling-directory.org.uk
fpa provides support in sex and sexual health to professionals throughout the whole of GB by running courses, offering training and publishing information
www.fpa.org.uk
Everyday Health is a wealth of information on everything regarding health including healthy sex
Porterbrook Clinic situated in Sheffield and run a monthly schedule of clinical lectures www.shsc.nhs.uk/service-a-z
SHADA — the Sexual Health and Disability Alliance, set up in 2005 to replace SPOD and support health and social care professionals who work with disabled people and their sexuality. Membership is free and meetings are held twice a year in London
www.shada.org.uk
Books
New Joy of Sex by Susan Quilliam 2008 Octopus.
A beautiful, tender book which many can gain from
The Sex Book by Suzi Godson 2002 Cassell.
Modern and wide-ranging
How to Choose a Partner by Susan Quilliam The School of Life 2016 – a lovely little book which young people will find very useful
Guide to Getting It On by Paul Joannides 2000 Goofy Foot Press.
Many testimonies by young people make this very real and convincing
The New Male Sexuality by Bernie Zilbergeld. Bernie is a psychologist specializing in human sexuality. He shares his and his clients’ experiences to produce a most comprehensive guide to enhancing desire and arousal, focusing on pleasure rather than performance, and keeping sex exciting and fulfilling
The Ultimate Guide to Orgasm for Women by Mikaya Heart. A comprehensive account of how to reach orgasm
Exhibitionism for the Shy by Carol Queen. A book which is about far more than just exhibitionism and could be very useful for disabled people who want to find new ways of enjoying sex.
Screw the Roses, Send me the Thorns — The Romance and Sexual Sorcery of Sadomasochism by Philip Miller and Molly Devon. The best instruction book on BDSM play and relationships
The Sex Myth — why everything we are told is wrong by Brooke Magnanti. 2012 Weidenfeld & Nicolson
She reveals scientific proof about the difference between men and women; sex addiction; the sexualisation of children; adult businesses bringing more rape to an area; pornography objectifying women; adult content on the net; trafficked sex slaves; banning of prostitution; and the motivation of the prohibitionists — with all the scams that have falsified the facts.
Good Vibrations Guide To Sex by Cathy Winks. Includes many treasures not to be found elsewhere such as a guide to improving self body image.
Supporting Disabled People with their Sexual Lives — A Clear Guide for Health and Social Care Professionals by Tuppy Owens with Claire de Than 2015 Jessica Kingsley
Health Care without Shame —a handbook for the sexually diverse and their caregivers by Charles Moser 1999 Greenery Press
Queer Crips — Disabled Gay Men and their Stories edited by Bob Guter and Jphn R. Killacky 2004 Routledge
Intellection Disability, Trauma and Physchotherapy Edited by Tamsin Cottis 2009 Routledge
Sexual Health four volumes edited by Mitchell S Tepper and Annette Owens,
with contributions addressing the meaning of sexual health, the effects of ignorance or neglect, and the role of love, touch, and communication. Volumes 1: psychological foundations; 2: physical foundations; 3:moral and cultural foundations; and 4: state-of-the-art treatments and research
Intersectionality, Sexuality and Psychological Therapies: Working with Lesbian, Gay and Bisexual Diversity by Roshan das Nair and Catherine Butler 2012 Wiley-Blackwell
Sexuality and Learning Disability – a resource for staff by Claire Fanstone and Zarine Katrak 2003 fpa
Holding On, Letting Go – sex, sexuality and people with learning disabilities by John Drury, Lynnne Hutchinson and Jon Wright 2000 Souvenir Press. Provides sensible advise and support for parents
ParentBooks website (also listed under Websites) has a section Disability, Puberty & Sexuality listing books for sale aimed at parents and professionals on Autism, Aspergers and Learning Difficulties http://www.parentbooks.ca/Sexuality_&_Disability.html
The Ultimate Guide to Sex and Disability 2004, Cleis Press
Sensitively written with many direct quotes from disabled people on how to change preconceived ideas about sex in order to gain more pleasure
Books Beyond Words using pictures on subjects of sex and sexuality www.rcpsych.ac.uk/publications.bbw
Women, sexuality and the political power of pleasure 2013 Edited by Susan Jolly, Andrea Cornwall & Kate Hawkins. Zed, which includes a chapter on disability: Enabling disabled people to have and enjoy the kind of sexuality they want by Alex Cowan and Lorna Couldrick
Journals
International Journal of Sexual Health
Journal of Sexual Medicine
The Journal of Sexuality and Disability
British Journal of Social Work includes articles about sex
Contemporary Sexuality — an international resource for educators, researchers and therapists published by the American Association of Sexuality Educators, Counselors and Therapists
Sexual and Relationship Therapy American — journal published by Taylor Frances online http://www.tandfonline.com/loi/csmt20
Papers
Why Don’t Healthcare Professionals Talk About Sex? A Systematic Review of Recent Qualitative Studies Conducted in the United Kingdom Kerry Dyer, BSc Hons and Roshan das Nair, PhD, CPsychol, AFBPsS. 30th July 2012 Journal of Sexual Medicine DOI: 10.1111/j.1743-6109.2012.02856.x
Abstract at: http://onlinelibrary.wiley.com/doi/10.1111/j.1743-6109.2012.02856.x/abstract
The Health Benefits of Sexual Expression White Paper published in 2003 in New York by the Katharine Dexter McCormick Library Planned Parenthood of America in cooperation with the Society for the Scientific Study of Sexuality
A Multiple Timepoint Pre-post Evaluation of a ‘Sexual Respect’ DVD to Improve Competence in Discussing Sex with Patients with Disability 2014 from http://download.springer.com/static/pdf/680/art%253A10.1007%252Fs11195-014-9375-3.pdf?auth66=1412151458_068dba6d428b9535f6775572917fd9bb&ext=.pdf
Talking about sex after traumatic brain injury: perceptions and experiences of multidisciplinary rehabilitation professionals Dyer, K. & das Nair, R. (2014). Talking about sex after traumatic brain injury: perceptions and experiences of multidisciplinary rehabilitation professionals. Disability and Rehabilitation, 36(17),1431-8.
Booklets
Contact-a-Family Booklets about young people with all disabilities, with excellent directories and resources. Edited by Helen Christophers and published by Contact-a-Family and available online:
http://www.cafamily.org.uk/publications.html?scat=39
http://www.cafamily.org.uk/pdfs/GrowingUpYoungPeople.pdf
http://www.cafamily.org.uk/pdfs/GrowingUpParents.pdf
http://www.cafamily.org.uk/pdfs/GrowingUpTeachers.pdf
Parent guide: Preparing for adult life and transition in Northern Ireland
http://www.cafamily.org.uk/media/597218/ni_transition_currentlastupdatedsep12.pdf
Websites
www.School-of-Sex.info The School of Sex for disabled people written by sexually experienced disabled people and those who support them.
www.SHADAInternational.com for pioneers in sex and disability around the world to talk about their work and others to learn.
www.cosrt.org.uk/sexual_difficulties.asp reliable sexual advice from sex therapists
Outsiders.org.uk wide range of information about sex and disability, including FAQs of the Sex and Disability Helpine
Safe adult toys https://www.beyonddelights.com/blogs/news/guide-to-adult-toys-the-importance-of-choosing-body-safe-materials
Elfrida Society website provides good respources and sexual training is included in their work www.elfrida.com/publications.html
Disability and Sex Resources http://incurable-hippie.blogspot.co.uk/2011/11/disability-and-sex-resources.html
Sexuality and Disability Webliography a huge international resource which has sadly not been kept up to date
www.bccpd.bc.ca/docs/sex_disabilitywebliog.pdf
10 Rules of Anal Sex by Jack Morin — essential for teaching in schools http://www.scribd.com/doc/86887/10-Rules-of-Anal-Sex-by-Jack-Morin
Sexability Blogspot www.sexsci.me
GreatSexAfter40.com advice for people of age
Youthnet good sex advice for young people www.youthnet.org
www.scarleteen.com down-to-earth sex information and help for teens and 20s
http://www.thesite.org/sexandrelationships
www.nhs.uk/Livewell/Sexandyoungpeople
Guide to Getting it On online with many useful links http://www.goofyfootpress.com/
Come As You Are website contains useful articles on many topics not covered elsewhere for example adapting sex toys to suit sensitivity, allergies, etc www.comeasyouare.com/sex-information
ParentBooks website section Disability, Puberty & Sexuality:
http://www.parentbooks.ca/Sexuality_&_Disability.html
Films
Disabled and Looking for Love a beautiful film focusing on the Outsiders Club and directed by Clare Richards who won an award for it, shown on BBC 3 https://www.youtube.com/watch?v=ofzxzBRpKFM
The Love Programme — Relationships and Sexuality, a Young Person’s Perspective 2012
made with people with learning disabilities by Kids. Available on YouTube. It is in three different parts. You can search for the name of the film on YouTube, or use the following web address:-
Part one: www.youtube.com/watch?v=4ASCysU1wto&feature=plcp
Part two: www.youtube.com/watch?v=fAzCXUz9sWw&feature=plcp
Part three: www.youtube.com/watch?v=KfNd7BUENHo&feature=plcp
Want 2007
outlines Loree Erickson’s sexual story as a queer woman with a disability. Through her film, she tells the viewer how she wants to be seen: as sexy, sexual and desirable. www.femmegimp.org
The Last Taboo 2012
directed by Alexander Freeman, telling the story of six people with various physical disabilities, sharing their perspectives on intimacy, relationships, and speaking of misconceptions regarding disability, identity, gender, attraction, beauty and sexuality. http://thelasttaboodocumentary.com
Planet Snail 2012
directed by Korean Yi Seung Hun. Award-winning poetic documentary about a couple, he deaf-blind and she with a spinal problem, and how they navigate their marriage
Scarlet Road 2012
An Australian documentary by Rachel Wotton on the rights of sex workers to see people with disabilities, and all that this entails
http://www.scarletroad.com.au/about/
The Sessions 2012
Directed by Ben Lewin. American feature film based on a true story. Mark, a 36- year-old man who uses an iron lung, decides he no longer wishes to be a virgin. With the help of his therapist and priest, he contacts Cheryl, a professional sex surrogate. The film follows the fascinating relationship which evolves between Cheryl and Mark as she takes him on his journey
(Sex)abeled: Disability Uncensored — University of California’s Disabled Student’s Union’s film about sex and disability. The film is free to view online, and it’s possible to order a DVD. The link also has useful questions and resources:
http://www.sexsmartfilms.com/free-videos/sex-abled-disability-uncensored
Helplines
Sexual Health Direct fpa 0845 122 8690
Sexual Advice Association – helpline and booklets on a range of male and female sexual difficulties 020 74867262 www.sda.uk.net
NHS Direct (England and Wales) 0845 46 47 and NHS 24 (Scotland) on 08454 24 24 24. FPA (Northern Ireland) 0845 122 8687
Sex and Disability Helpline 07770 884 985 sexdis@outsiders.org.uk
“UKAT” – UK Addiction Treatment Centres, https://www.ukat.co.uk/ 0808 252 6766
Contact a Family http://www.cafamily.org.uk/search-results/?s=growing+up 0808 808 3555
Pleural Mesothelioma Center pleuralmesothelioma.com
London Lesbian and Gay Switchboard 0300 330 0630 daily 10am – 11pm
Rape Crisis 0808 802 9999
Survivors UK male rape and sexual abuse 0845 122 1201
Cancer and Sex Macmillan Support Line free on 0808 808 00 00
Traumatic Brain Injury 0808 800 2244 helpline@headway.org.uk
Services & Self-help Groups
College of Sexual and Relationship Therapists the place to find a sex therapist www.cosrt.org.uk
Relate offers advice, relationship counselling, sex therapy, workshops, mediation, consultations and support face-to-face, by phone and through thier website www.relate.org.uk
Relationships-Scotland network of affiliated local services that provide relationship counselling, family mediation, child contact centres and other family support services www.relationships-scotland.org.uk
Outsiders for physically and socially disabled people www.outsiders.org.uk
Nightclubs where People with Learning Disabilities can find partners type this into Google with your town, to find your local club
Respond work around abuse and learning disabled people 0808 808 0700 www.respond.org.uk
Asexual Visibility and Education Network AVEN for people who don’t experience sexual attraction www.asexuality.org
Circles UK for people who might sexually offend www.circles-uk.org.uk
Press for Change advises people on transgender law www.pfc.org.uk
Policies
SHADA have drafted policies for many kinds of setting and situations, which you can use to adapt to suit yourselves www.shada.org.uk
Zoe Grace Cousins will help write policies 01379 851959 / 07813035763 zoeleapfrog@gmail.com
Adults with learning disabilities personal and sexual relationships: A policy for providers in Westminster NHS City of Westminster PLD sexual health booklet. The policy was drawn up in 2012 association with Image in Action and fpa. Also contains a list of local organizations and services in London Download PDF
SPECIALIST LITERATURE FOR VARIOUS PROFESSIONS
Medicine
Journal of Sexual Medicine www.onlinelibrary.wiley.com/journal
The Institute of Psychosexual Medicine 020 7580 0631 admin@ipm.org.uk Has a comprehensive list of doctors throughout the country who are trained in psychosexual medicine www.ipm.org.uk
Nursing
Human Sexuality in Nursing Care by Jean Glover 1985 Croom Helm Ltd., This book is really helpful and inspiring.It is out of print but still available online
Sexual health competences: an integrated career and competence framework for sexual and reproductive health nursing across the UK
http://www.rcn.org.uk/__data/assets/pdf_file/0007/78631/002469.pdf
Social Work
Sexuality and Social Work by Julie Bywater and Rhiannon Jones 200
Sexual issues in social work by Steve Myers and Judith Milner 2007
Occupational Therapy
The impact of assistive equipment on intimacy and sexual expression Taylor Bridget (2011) British Journal of Occupational Therapy, 74(9): 435-42
Sexual Expression and Occupational Therapy Lorna Couldrick (2005). The British Journal of Occupational Therapy, 68(7): 315-318
Survey of occupational therapy students’ attitudes towards sexual issues in clinical practice Jones Mairwen K, Weerakoon Patricia Pynor, Rosemary A (2005). Occupational Therapy International, 12(2): 95-106
Occupational therapist involvement in sexuality counselling with clients with rheumatoid arthritis. Focus on research Haslam L(2001)B British Journal of Occupational Therapy, 64 (9): 448
Sexual reconstruction after the “loss of manhood”: implications for occupational therapy Yau M (2011).Occupational Therapy Australia, 24th National Conference and Exhibition, 29 June – 1 July 2011; Australian Occupational Therapy Journal, 58: Supplement: 127
Proposing a new sexual health model of practice for disability teams: The Recognition Model Couldrick L, Sadlo G, Cross V (2010). International Journal of Therapy and Rehabilitation, 17(6): 290-8
Addressing sexuality with adult clients with chronic disabilities: occupational therapy’s role Hattjar B, Parker JA, Lappa CL (2008) OT Practice, 13(11): Suppl. (CE-1-CE-8, 2p)
Sex and occupational therapy: contradictions or contraindications? Pollard N, Sakellariou D (2007) British Journal of Occupational Therapy, 70(8): 362-5
Sexual Orientation and Occupation: Gay Men and Women’s Lived Experiences of Occupational Participation Bergan-Gander Rebecca, von Kurthy Heidi (2006). The British Journal of Occupational Therapy, 69(9): 402-408
Psycho-social sexual rehabilitation: Part Two. A survey on different facets of sexual rehabilitation in the psychiatric field of occupational therapy Fouche LO (2006). South African Journal of Occupational Therapy, 36(1): 2-5
Understanding issues of sexuality and privacy for individuals with developmental disabilities Preston L, Lewin JE (2006) OT Practice, 11(22): Suppl. (CE-1-CE-8, 2p)
Intimate relationships and Sexual function list of resources for occupational therapists produced by the College of Occupational Therapists in 2013 www.cot.co.uk/hot-topics/hot-topics
Sex Therapy
Sue Newsome specializes in seeing disabled clients and she can be reached on sue.newsome
College of Sex and Relationship Therapy holds meetings and runs a website were you can find trained sex therapists around the country and where you can find reliable sexual advice www.cosrt.org.uk
Pink Therapy trains professionals and para-professionals on gender and sexuality issues, including BDSM, asexuality and psychosexual therapy. The website provides a list of gay and sexually diverse therapists around the country www.pinktherapy.com
Directory of Sex Therapists http://spokzpeople.org.uk/directory.asp
Sexual bodywork as an adjunct to sex therapy? Gianotten WL. Nordisk Sexologi 1997, 15; 20-36
PAs and Care Work
Sexuality and Access Project Summary highlighting the need for safe discussions around sex between client and PA to avoid assumptions and unclear boundaries making the relationship difficult. Cory Silverberg and Fran Odett Springtide Resources. Downloadable PDF ebookbrowse.com/sexuality-and-access-survey-summary-pdf
Physiotherapy
Pelvic Floor Physiotherapy and Female Intimacy in Multiple Sclerosis — by Taina Vahtera. Physiotherapist, Masku Neurological Rehabilitation Centre, Finland. http://www.msif.org/en/about_ms/ms_by_topic/continence/articles/pelvic_floor_phy.html
Sex and Relationships Education (SRE)
UK sex and relationships education fails to prepare young people for modern day life Brook’s Press Release 12-10-2011
www.brook.org.uk/application/brookpr/index.php
Sex and Relationship Education for Young People with Physical Disabilities: a booklet for teachers http://www.cafamily.org.uk/
No Sex Education Please, We’re Muslim! by Irna Qureshi, anthropologist and writer on British Asian culture
www.huffingtonpost.co.uk/irna-qureshi/muslim-sex-education-_b_2090621.html
Sex and the 3 Rs: Rights, Responsibilities and Risks – A Sex Education Package for Working with People with Learning Difficulties 2008 paperback by Michelle McCarthy and David Thompson
SREresouces.com provides learning resources and information about sex for young people with disabilities. www.sreresources.com
Sex and relationships education — a guide for independent schools and those working with them
http://www.sexeducationforum.org.uk/media/5006/sre_independent_school_guide_web.pdf
Sex Education and Children and Young People with an ASD —
http://www.autism.org.uk/living-with-autism/communicating-and-interacting/sex-education-and-children-and-young-people-with-an-asd.aspx
SPECIALIST ORGANISATIONS AND LITERATURE ON VARIOUS SUBJECTS
Abortion
ImNotSorry.net website featuring women sharing positive and negative stories about their abortions
Adolescents
Adolescents and Sex: The Handbook for Professionals Working with Young People by S. Bekaert 2004 Radcliffe Publishing
Teenage Sexuality: Health, Risk and Education Coleman, J. & Roker, D. 1998 Harwood
Best Practice Guidance for Doctors and other Health Professionals on the Provision of Advice and Treatment to Young People under 16 on Contraception, Sexual and Reproductive Health 2004 Department of Health http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets
Anal Sex
10 Rules of Anal Sex by Jack Morin — essential for teaching in schools
http://www.scribd.com/doc/86887/10-Rules-of-Anal-Sex-by-Jack-Morin
Arthritis
Our Relationships, Our Sexuality – a guide for people with arthritis. Arthritis Care
Asperger’s Syndrome
Love, Sex and Long-Term Relationships — What People with Asperger Syndrome Really Really Want by Sarah Hendrichx 2008 Jessica Kingsley
http://aspieweb.net/aspergers-sex-difficulties/
Autism
http://autism.about.com/lr/sexuality_and_autism/358731/1/
Sexual Behaviours in Autism: Problems of Definition and Management George Realmuto and Lisa Ruble Journal of Autism and Developmental Devepopment Vol 29 No 2 1999
Articles on Sex and Autism http://nakedbrainink.com
Autonomic Dysreflexia
Broadened Horizons Dr Elliot talks about sex and people who are spinal injured using vibrators, with considerations about automatic dysreflexia
http://www.broadenedhorizons.com/independent-living/sexuality
Autonomic Dysreflexia www.nursingtimes.net/autonomic-dysreflexia/197701.article#
Autonomic Dysreflexia http://www.streetsie.com/autonomic-dysreflexia/
Autonomic Dysreflexia and Vibrostimulation for Men with Spinal Cord Injury by Stanley Ducharme www.stanleyducharme.com/resources/men_with_spinal.htm
Back Pain
Sex and back pain: advice on restoring comfortable sex that has been lost to back pain by Hebert Lauren (1987) published by Greenville ME: IMPACC USA
Birth Control
Family Planning Association fpa www.fpa.org
Does Having a Vasectomy Lower Sex Drive? http://contraception.about.com/od/surgicalpermanentmethods/f/Vasectomy-and-Sex-Drive.htm
Blindness — see Visual Impairment
Brain Injury
Sexuality After Brain Injury
http://www.tbistafftraining.info/Presenters/Module6/mod6-presenter.pdf
Sexual difficulties after traumatic brain injury and ways to deal with it (2003) by Ronit Aloni and Shlomo Katz Springfield: Charles C. Thomas Publisher
Sexual changes associated with traumatic brain injury Ponsford J 2003. Neuropsychology Rehabilitation, 13: 275-289
Sexual Dysfunction: Beyond the Brain-Body Connection Balon R. 2011 Basel NewYork Karger
Will Anyone Want to Date Me After a Brain Injury? Adam Anicich
http://www.brainlinemilitary.org/content/multimedia.php?id=7150
Breathlessness
Sexual Health and the Respiratory Patient C. Law 2001 www.bjpcn-respiratory.com/…/Vol3_Num2_March_2009_p2
Sex and Breathlessness The British Lung Foundation, downloadable online
Brittle Bones (Osteogenesis imperfecta)
Sex on wheels
http://www.guardian.co.uk/society/2007/nov/27/disability.health
Cancer
i-Said Sue Lennon works with i-said is an oncology nurse and trained sex therapist. She now trains health professionals in sex and cancer care. www.i-said.co.uk
Intimacy & Sexuality For Cancer Patients and their Partners Tips & Advice for Your Journey of Recovery Dr. Darja Brandenburg. Booklet which is downloadable online
Relationships sex and fertility for young people affected by cancer 2012 Macmillan with downloadable PDF
Sexuality and Cancer if You are Single www.cancerhelp.org.uk
Being Single with Cancer www.asconews.org
The Single Man and Cancer and The Single Woman with Cancer www.cancer.org
www.lgbtcancer.com for lesbians, gays bisexuals and transgendered people with cancer
Association of Cancer Online Resources. Includes a “cancer-sexuality” mailing list www.acor.org
Jo’s Cervical Cancer Trust with an online Forum discussing sex www.jostrust.org.uk
Mesothelioma Treatment Community of TreatMesothelioma.org is dedicated to the assistance and guidance of asbestos and mesothelioma v
Cardio-vascular problems
Sex with a Heart Condition http://www.outsiders.org.uk/leaflets/sex-with-a-heart-condition
A Guide to Congestive Heart Failure https://www.acls.net/guide-to-
Cerebral Palsy
Sexuality of Young Adults with Cerebral Palsy: Experienced Limitations and Needs Diana Wiegerink,Marij Roebroeck, Jim Bender, Henk Stam, Peggy Cohen-Kettenis and Transition Research Group South West Netherlands. Sex and Disability 2011 June; 29(2): 119–128.
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3093545/
Sex Tip http://cpmatters.tumblr.com/post/14314771108
Sex with Others
www.sexualityanddisability.org/sexuality/sex-with-others.aspx
Continence and Incontinence
What about sex? For people with a stoma and their partners E Galt and H Hill 2002 Dansac Ltd. An ebook http://www.e-pages.dk/dansac/23/2
The Simon Foundation for Continence a patient-led foundation to bring the topic of incontinence into the open; remove the stigma associated with incontinence; and provide help and hope to individuals with incontinence, their families, and the professionals who provide their care www.simonfoundation.org
Incontinence and Sexuality: findings from a qualitative persective Brenda Roe and Carl May 1999 Journal of Advanced Nursing 30(3), 573-579 study which highlights how much more work needs to be done
Leaky Bladder during Intercourse
www.goofyfootpress.com/blogs/PaulsBlog/leaky-bladder/
www.vaginismus.com
http://www.msif.org/en/about_ms/ms_by_topic/continence/articles/pelvic_floor_phy.html
Speedicath — a catheter for men designed for discretion speedicathcompactmale.coloplast.ca
Cystic Fibrosis
Sexuality, Fertility and Cystic Fibrosis http://www.cysticfibrosis.ca/assets/files/pdf/Sexuality_and_Fertility_AdultE.pdf
Dating
(NB dating sites for vulnerable people attract preditors)
Outsiders a safe peer support and dating club for people with social and physical disabilities www.outsiders.org.uk
2date4love a dating site that enables people who cannot engage in sexual intercourse to meet and experience love, companionship and intimacy www.2date4love.com
Stars in the Sky dating for learning disabled people in London and some other areas www.starsinthesky.co.uk
Beautiful Octopus and other clubs — type learning disability disco into google to find local clubs
Stuttering and Dating – 7 Stuttering Tips For Your Dating Life Chazzler DiCyprian http://stutteringdissolution.com/blog/stuttering-and-dating-7-stuttering-tips-for-your-dating-life
Will Anyone Want to Date Me After a Brain Injury? Adam Anicich
http://www.brainlinemilitary.org/content/multimedia.php?id=7150
Deaf-Blind
Batteries Not Included a sexuality resource pack for working with people with complex communication needs produced by Sense Scotland and Common Knowledge. http://www.ssc.education.ed.ac.uk/courses/db/battery7.html
Talking Sense Summer 2012 (Vol 57 No 2) focuses on sexuality. Available to members www.sense.org.uk/content/talking-sense-our-magazine
Sexual Development of young deafblind people 2005 by Lex Grandia (http://www.wfdb.org/sexual_development.text.shtml)
Deafness — see Hearing Impairment
Dying
An Amateur’s Guide to death and dying: enhancing the end of life — by Richard Wagner PhD ACS 2012 Nazca Plains
Erections
Improving Your Erections:- Medical Treatments by Stanley Ducharme http://www.stanleyducharme.com/resources/improve-erections.htm
Fatigue
Fatigue and Sex – Sexual Health and Disability Alliance www.shada.org.uk/?q=node/36
Hate Crime
Scapegoat: Why We Are Failing Disabled People by Katherine Quarmby 2013
Hearing Impairment
Sexuality education in residential and day schools for deaf students: curricular components and administrative practices by Susan Jacoby an electronic book and thesis done at Gallaudet University in 2005
Sexuality and Intimacy with Hearing Loss www.ifhoh.org/papers/sexual.htm
Sex after Heart Attack
https://www.acls.net/2015/04/01/is-there-sex-after-a-heart-attack-is-it-possible-is-it-safe/index.html.
Hip Replacement
Sex after Hip Replacement www.outsiders.org.uk/leaflets/sex-after-hip-replacement
Hysterectomy
Sex after hysterectomy www.nhs.uk/Livewell/Goodsex/Pages/sex-after-hysterectomy.aspx
Hysterectomy Doesn’t Affect Women’s Sex Lives http://women.webmd.com/news/20000609/hysterectomy-doesnt-affect-womens-sex-lives-study-finds
Learning Difficulties
A Sensory Curriculum for Very Special People by Flo Longhorn 2010 Souvenir Press
Relationships in the lives of people with learning difficulties — a book for people with learning disabilities to learn and understand about sex and relationships published by the Elfrida Society www.elfrida.com/publications
Sexuality and Learning Disability – a resource for staff by Claire Fanstone and Zarine Katrak 2003 fpa
The Love Programme — Relationships and Sexuality, a Young
Person’s Perspective made with people with learning disabilities by Kids. Available on YouTube. It is in three different parts. You can search for the name of the film on YouTube, or use the following web address:-
Part one: www.youtube.com/watch?v=4ASCysU1wto&feature=plcp
Part two: www.youtube.com/watch?v=fAzCXUz9sWw&feature=plcp
Part three: www.youtube.com/watch?v=KfNd7BUENHo&feature=plcp
Sex and the 3 Rs: Rights, Responsibilities and Risks – A Sex Education Package for Working with People with Learning Difficulties 2008 paperback by Michelle McCarthy and David Thompson
Creating a Social/Sexual Skills-Building Program — a curriculum which guides staff when creating a program to enhance social/sexual skills You And I/National Institute for People with Disabilities https://secure2.convio.net/yai/site/Ecommerce?store_id=1781
Creating a Social/Sexual Skills-Building Program — a curriculum which guides staff when creating a program to enhance social/sexual skills — You And I/National Institute for People with Disabilities (pioneering organisation) https://secure2.convio.net/yai/site/Ecommerce?store_id=1781
Taking a Personal Approach: a parents guide to personal budgets handbook — www.kids.org.uk/mip
Principles of safeguarding and protection for learning disability workers — by Simon Bickerton, identifies different types of abuse and the possible signs and symptoms that might indicate that abuse has occurred, and explores why people with a learning disability might be more vulnerable to abuse and what you must do if abuse is suspected or alleged http://www.bild.org.uk/our-services/books/good-support/principles-of-safeguarding-and-protection
Our sexuality too! Looking at discrimination suffered by people with learning difficulties from the gay, bisexual and transgender communities — http://peoplefirstltd.com/what-we-do/publications/
Everything you want to know about Safe Sex — a useful guide on safe relationships by and for people with learning difficulties http://peoplefirstltd.com/what-we-do/publications/
How to Turn Dreams to Reality — an fpa course for people with learning disabilities on sex and relationships
Sterilisation and women with learning disabilities: An international issue S Earle, C Komaromy and L Layne (eds) (2012)
Secret loves, hidden lives? Exploring issues for people with learning difficulties who are gay, lesbian or bisexual by David Abbott and Joyce Howarth 2005 Nora Fry Centre, University of Bristol http://www.bristol.ac.uk/norahfry/research/completed-projects/secretloveseasyread.pdf
Lesbian, Gay, Bisexual, Trans and Intersex (LGBTI)
Pink Therapy trains professionals and para-professionals on gender and sexuality issues, including BDSM, asexuality and psychosexual therapy. The website provides a list of gay and sexually diverse therapists around the country www.pinktherapy.com
International Lesbian, Gay, Bisexual, Trans and Intersex Association, ILGA publishes online resources related to multi-discrimination of people with disability and LGBTI people http://www.ilga-europe.org/home/issues/multiple_discrimination/resources_on_multiple_discrimination/disabilit
Intersectionality, Sexuality and Psychological Therapies: Working with Lesbian, Gay and Bisexual Diversity by Roshan das Nair and Catherine Butler 2012 Wiley-Blackwell
Sexuality and Access Project highlighting the need for safe discussions around sex between client and PA to avoid assumptions and unclear boundaries making the relationship difficult. Cory Silverberg and Fran Odett Springtide Resources. www.ebookbrowse.com/sexuality-and-access-survey-summary-pdf
London Lesbian and Gay Switchboard 0300 330 0630 daily 10am – 11pm
Gay Youth UK lists a range of UK switchboards, both local and national http://www.gayyouth.org.uk
Want 2007 outlines Loree Erickson’s sexual story as a queer woman with a disability. Through her film, she tells the viewer how she wants to be seen: as sexy, sexual and desirable. www.femmegimp.org
Secret Loves, hidden lives? Exploring issues for people with learning difficulties who are gay, lesbian or bisexual David Abbott and Joyce Howarth 2005 http://www.bristol.ac.uk/norahfry/research/completed-projects/secretloveseasyread.pdf
www.lgbtcancer.com for lesbians, gays, bisexuals and transgendered people with cancer
Gay and Lesbian Ostomates a support group for the gay/lesbian, and bisexual ostomate (or other type of diversionary procedure), their partners, family, caregivers and friends. http://www.glo-uoaa.org/
Coming Out — A Gay Man’s Journey with an Ostomy www.c3life.com/ostomy/community/story_view.aspx?id=17
A Bill of Transsexual Rights
http://individual.utoronto.ca/james_cantor/blog9.html
Press for Change advises people on transgender law www.pfc.org.uk
There is no word for it Laura Bridgeman and Serge Nicholson 2012 Hotpencil Press. Testimonies revealing what it’s like to be transgenered, go though transition, start new relationships and enjoy sex
National Name-calling Week www.youthresource.com
Coming Out www.nytimes.com/interactive/2011/05/23/us/20110523-coming-out.html?ref=us#
Youth Guardian Services provides online support services to gay, lesbian, bisexual, transgendered, questioning, and straight youth www.youth-guard.org
Kenric — “uniting lesbians nationwide” http://www.kenric.org
GEMMA — newsletter with personal contact ads and a mail-forwarding system
gemmagroup@hotmail.com
Loneliness and social isolation
The Lonely Society Jo Griffin 2010 The Mental Health Foundation www.mentalhealth.org/campaigns/loneliness-and-mental-health
Masturbation
Handisex an organisation in Copenhagen which provides an advocacy service enabling mobility impaired adults to enjoy sex toys so they can reach orgasm www.webwiki.com/handisex.dk
Sex for One — the joy of self-loving by Betty Dodson 1996 Crown
The Ultimate Guide to Orgasm for Women by Mikaya Heart 2009 Cleis
Medications that interfere with sexual function and pleasure
Are your medicines disrupting your sex life? a short account on NetDoctor which is very much aimed at men www.netdoctor.co.uk/sexandrelationships/medicinessex.htm
Medications that interfere with sexual function and pleasure
Drugs That Affect Sexual Function Theresa L, Crenshaw MD, James P Goldberg 1996 Norton Professional Books
Are your medicines disrupting your sex life? a short account on NetDoctor which is very much aimed at men www.netdoctor.co.uk/sexandrelationships/medicinessex.htm
Mental Health
Stigma and the Sexual Isolation of People with Serious Mental Illness
Eric Wright, Dustin E Wright, Brea Perry and Carrie E Foote-Ardhah 2007 Society for the Study of Social Problems, Inc.
Sex and Mental Health in Old Age
Gary J. Kennedy MD, Moises M. Martinez MD, and Nicholas Garo, MD Primary Psychiatry. 2010;17(1):22-30 Downloadable online
Grossly disinhibited sexual behavior in dementia of Alzheimer’s type Dhikav V, Anand K, Aggarwal N. Arch Sex Behav. 2007;36(2):133-134
Human Sexuality and Mental Illness: Consumer Viewpoints And Recovery Principles findings and recommendations from a focus group of patients inside a mental health hospital PDF online
Sexual health matters – for mental health explores sexual health and sexuality, sexual risk, sexual violence, abuse and trauma and making a difference in your practice www.scie.org.uk/publications/elearning/sexualhealth/index.asp
Sexuality And Mental Health about LGBTI in particular
www.counselling-directory.org.uk and www.mind.org.uk
Menopause
The Daisy Network supporting those affected by premature menopause www.daisynetwork.org.uk
Motor Neurone Disease
Sex and relationships for people who have motor neurone disease and their partners http://www.mndassociation.org
Multiple Disability
A Sensory Curriculum for Very Special People by Flo Longhorn 2010 Souvenir Press
Muscular Dystrophy
Muscular Dystrophy Campaign leaflets Becoming a Man and Becoming an Adult
http://www.muscular-dystrophy.org/assets/0001/6199/Transition_booklet_web.pdf
http://www.muscular-dystrophy.org/assets/0001/6097/Transition_guide_report_web.pd
Interviews and Personal Stories http://www.muscular-dystrophy.org/about_muscular_dystrophy/yourstories/interviews/3018_sex_and_disability
Talking about Sex http://www.muscular-dystrophy.org/how_we_help_you/living_with_muscular_dystrophy
Personal Relationships, Sexuality and Muscular Dystrophy
http://www.muscular-dystrophy.org/how_we_help_you/publications/1928_personal_relationships_and_sexuality
MS
Sexual Dysfunction and MS www.nationalmssociety.org/about-multiple-sclerosis/what-we-know-about-ms/symptoms/sexual-dysfunction/index.aspx
Sexuality and MS with a Guide for Women and a Guide for Men by Nicki Ward-Abel 2007 Multiple Sclerosis Trust
Sexuality, multiple sclerosis and women — Foley FW, Sanders A, in MS Management 1997; 4:1-9 http://informahealthcare.com/doi/abs/10.3109/13682828309012237
Pelvic Floor Physiotherapy and Female Intimacy in Multiple Sclerosis — by Taina Vahtera. Physiotherapist, Masku Neurological Rehabilitation Centre, Finland. http://www.msif.org/en/about_ms/ms_by_topic/continence/articles/pelvic_floor_phy.html
Older People in Care Homes
Older people in care homes: sex, sexuality and intimate relationships
An RCN discussion and guidance document for the nursing workforce PDF online
Sexual health and the new ageing — Merryn Gott Age and Ageing, Volume 35,I ssue 2 Pp.106-107 http://ageing.oxfordjournals.org/content/35/2/106.full
Sexuality in older age: essential considerations for healthcare professionals — Abi Taylor and Margot A. Gosney Age and Ageing 42 issue 2 March 2013 http://ageing.oxfordjournals.org/content/early/2011/07/19/ageing.afr049.full
Sexuality and Dementia — Alzheimer Scotland Information Sheet IS28 downloadable from:
http://www.alzscot.org/pages/info/sexuality.htm
Pain During Intercourse
Pain During Intercourse and Chronic Pelvic Pain for Men
www.goofyfootpress.com/links/pain-men
Pain During Intercourse and Chronic Pelvic Pain for Women http://www.goofyfootpress.com/links/pain-women/
Peyrones Disease
Peyrones Disease Martin K. Gelbard M.D. www.peyronies.org
Phimosis
Treating Phimosis with Masturbation 1997 Beaugé M. The causes of adolescent phimosis. British Journal of Sexual Medicine 1997; Sept/Oct: 26
www.cirp.org/library/treatment/phimosis/beauge2
Psoriasis
How to Have a Happy Sex Life When You Have Psoriasis http://www.health.com/health/condition-article/0,,20234521_2,00.html
Psoriasis, sex and relationships
www.morethanpsoriasis.co.uk/sex-and-relationships
Psoriasis linked to sexual dysfunction in men
http://www.news-medical.net/news/20120601/Psoriasis-linked-to-sexual-dysfunction-in-men.aspx
Psoriasis and sex: a study of moderately to severely affected patients Gupta MA, Gupta AK. International Journal of Dermatology 1997 Apr;36(4):259-62 http://www.ncbi.nlm.nih.gov/pubmed/9169321
Prostatitis
Chronic Prostatitis information on Chronic Prostatitis (CP/CPPS), Bladder Pain Syndrome/Interstitial Cystitis (BPS/IC) and Pelvic Myoneuropathy www.chronicprostatitis.com
Rehabilitation
Sexual aspects of rehabilitation: The client’s perspective Northcott Rebekah, Chard Gill (2000). The British Journal of Occupational Therapy, 63(9): 412-418
Addressing sexual activities in inpatient rehabilitation Physical Disabilities Special Interest Section Quarterly, 29(4): 2-3, 4Patria L (2006)
Safer Sex
www.en.wikipedia.org/wiki/Safe_sex
www.nhs.uk/Livewell/sexualhealth
Semen Allergies
Semen Allergies http://www.goofyfootpress.com/blogs/PaulsBlog/semen-allergies
Sex Toys
The MA+Guide — A guide to More Accessible sexuality-related assistive technology comprehensive list of sex toys that might be suitable for disabled people by Narelle Higson (Occupational Therapist) The Multiple Sclerosis Society of Western Australia (Inc)
http://www.mswa.org.au/assets/templates/main/documents/Member%20Services/OT/Guide.pdf
Tips on Adapting Sex Toys http://www.comeasyouare.com/default/index.cfm/sex-tips/sex-and-disability/ tips on adapting sex toys
Desire and Pleasure fpa
http://www.desireandpleasure.co.uk
Sexual Abuse
Psychological assessment of adult survivors of childhood sexual abuse within a naturalistic clinical sample Callahan KL, Price JL, Hilsenroth MJ (2003) Journal of Personality Assessment, 80(2): 173-84.
Childhood trauma with specific reference to sexual abuse: critical role of the health care professions Jansen CA (2003) . Africa Journal of Nursing & Midwifery, 5(1): 3-9
Sexual Advocacy
Sue Newsome (who appears in our training film) talks to clients and patients to find what their sexual needs are and helps them find ways to meet these needs
Becky Adams of Para-Doxies offers a similar service www.Para-Doxies.co.uk
Greg Sams can help by email and phone in booking services see www.TLC-Trust.org.uk
Handisex in Copenhagen is the pioneer in sexual advocacy, also using vibrators when required www.webwiki.com/handisex.dk
People First — support self advocacy groups of people with learning difficulties for people with learning disabilities across the country http://peoplefirstltd.com
Sexual Diversity
Kink Aware Professionals run by the American NCSF (National Coalition for Sexual Freedom) and is available for psychologists, psychiatrists, doctors and lawyers to list their services as friendly towards people in the swinger, BDSM and poly scenes, some in Britain http://www.ncsfreedom.org/index.php?option=com_keyword&id=282
Pink Therapy provides a list of gay and sexually diverse sex therapists around the country www.pinktherapy.com
Playing with Disabilities about how some disabled people involve their impairments in their BDSM play, by Angela Stassinopoulos, 2008 Power Exchange Books
Sexual Services for Disabled People
EASE: Equitable and Accessible Sexual Expression — a disability rights group in Vancouver dealing with challenges many people with disabilities face when it comes to sexual expression
Short Life Expectancy
Sexuality Working Alliance Group SWAG group of professionals working in
this area meeting regularly at the Open University, coordinated by Together
for Short Lives
www.togetherforshortlives.org.uk
Sex and young disabled people with progressive conditions by Dr Darja
Brandenburg – View PDF
Sexuality in the palliative – terminal phase of cancer Gianotten WL..
Sexologies 2007; 16: 299-303
Sexual Health in the terminally ill 2011Gianotten WL, Hordern AJ. In:
Mulhall JP, Incrocci L, Goldstein I, Rosen R, (editors) Cancer and Sexual
Health, New York, Humana Press, 2011: 577-587
A Heideggerian phenomenological study considering the meaning of
sexuality and intimacy for patients and partners of patients with a life-
limiting illness Bridget Taylor 2013 (as yet unpublished)
http://www.guardian.co.uk/society/2007/jan/15/healthsocialcare
Speech Impairment
Speech Pathology Considerations in the Management of Transsexualism–A Review 1983 by Jennifer M. Oates1 and Georgia Dacakis1 School of Communication Disorders, Lincoln Institute of Health Sciences http://informahealthcare.com/doi/abs/10.3109/13682828309012237
1983, Vol. 18, No. 3 , Pages 139-151 Ω
http://www.britishvoiceassociation.org.uk/articles_working-with-transexuals_antoni.htm
Sexual Health: Knowledge and Skills for People who Use AAC a teaching tool http://www.accpc.ca/Speak_Up/resources-sexhealthk&saac.htm
Spina Bifida
Below the Belt excellent booklet for teens on continence, relationships and sex. ASBAH (now Shine) out of print and hard to find
Sexual Health in Adult Men with Spina Bifida by Gary W Bong and Eric S Rovner 2007 The Scientific World Journal
Spinal Injury
i-Said Michelle Donald works with i-said is a spinal injured woman who trained as a sex therapist and trains health professionals in sex and spinal injury www.i-said.co.uk
Sexuality and Reproductive Health in Adults with Spinal Cord Injury: What You Should Know 2011 Paralyzed Veterans of America and Consortium for Spinal Cord Medicine
Male Fertility Following Spinal Cord Injury: A Guide For Patients 2010 Nancy L. Brackett, Ph.D., HCLD Emad Ibrahim, M.D. Charles M. Lynne, M.D. University of Miami School of Medicine Includes topics such as erectile and ejaculatory function and vibrators, with useful diagrams
Ferticare Vibrator used for ejaculation. Ejaculation can decrease spasms for a period of time www.multicept.dk
Spinal Injury Network a website on spinal cord injury with information about sexuality and professional care www.spinal-injury.net/sexuality-spinal-cord-injury.htm
Providing Comprehensive Sexual Health Care in Spinal Cord Injury Rehabilitation: Continuing Education & Training for Health Care Professionals 1997 Mitchell S Tepper
Spinal Cord Injury Sex and Intimacy Forum for spinal cord injured people and their partner/s, as well as health care professionals, to discuss the subject and present articles written by specialists www.sexsci.me
The Mad Spaz Club section on sexuality with many interesting insights www.streetsie.com/category/sex-love-relationships
Stammer
Stuttering and Dating – 7 Stuttering Tips For Your Dating Life Chazzler DiCyprian http://stutteringdissolution.com/blog/stuttering-and-dating-7-stuttering-tips-for-your-dating-life
Stroke
Sex after Stroke The Stroke Association www.stroke.org.uk
Understanding Reproductive Loss: International Perspectives on Life, Death and Fertility by Sarah Earle Ashgate http://www.ashgate.com/isbn/9781409428107
Under-age Genital Cutting
www.circumcision.org on circumcision
www.forwarduk.org.uk on female genital mutilation
NormUK http://www.norm-uk.org/index.html
How the Foreskin Works www.circumstitions.com/Works.html
Visual Impairment
Knowledge, skills and feelings of both parties in Sex Education and Young People with visual impairment, who is limited? talk by Brandenburg, S. in the proceedings from conference on 25 March 1998, Scottish Sensory Centre, University of Edinburgh
RNIB Emotional Support Service — for people losing their sight, experiencing sight loss and living with sight loss “committed to a working practice that
values equality and diversity. “Sight loss does not discriminate and
neither do we” 0303 123 9999, ess@rnib.org.uk http://www.rnib.org.uk/emotionalsupport
A comprehensive guide to home adaptations for blind and partially sighted people.
War Injured Military
Veteran’s Sexual Health Special Issue , 24 / 4, 2012 of the International Journal of Sexual Health focuses on veterans’ sexual health and functioning
http://www.tandfonline.com/toc/wijs20/current
Will Anyone Want to Date Me After a Brain Injury? Adam Anicich
http://www.brainlinemilitary.org/content/multimedia.php?id=7150
The Battle for Love
http://mitchelltepper.com/the-battle-for-love/
Hidden Battles on Unseen Fronts: Stories of American Soldiers with Traumatic Brain Injury and PTSD by Celia Straus for the Armed Forces Foundation, published by Casemate Publishers. 2009
See also AFF Wikipedia page for posterity or one of the four non-profits they are now supporting: Hire Our Heroes (https://hireourheroes.org/), Team Rubicon (http://teamrubiconusa.org/), The Mission Continues (https://www.missioncontinues.
and https://www.
Breaking the Silence: supporting intimate relationships for our wounded troups and their partners: a call to action by David Satcher1, Mitchell S. Tepper2, Christian Thrasher1, Sharon A. Rachel. International Journal of Sexual Health, 24:6–13, 2012